Contact Us

To learn more about ORDR and this project, please visit the ORDR Web site at or contact Dr. Yaffa Rubinstein:

Yaffa Rubinstein, PhD.
Director of Patient Resources for
Clinical and Translational Research
Office of Rare Diseases Research,
6100 Executive Blvd. 3A07
Rockville, MD 20892-7518
Phone: (301) 402-4338
Fax: (301) 480-9655
Web site: