Welcome to the Biospecimens/Biorepositories Website: Rare Disease-HUB (RD-HuB) of the Office of Rare Diseases Research (ORDR). This Website contains a searchable database of biospecimens collected, stored, and distributed by biorepositories in the United States and around the globe.


  1. To help and assist interested parties and investigators search, locate, and identify desired biospecimens needed for their research.
  2. To facilitate collaboration and sharing of material and data among investigators across the globe.
  3. To accelerate research to facilitate the discovery of new treatments, therapeutics and eventually cures for rare diseases as well as common diseases.
  4. To identify, locate and increase the awareness of existing biorepositories across the globe.
  5. To link the RD-HuB with the Global Rare Diseases Patient Registry and Data Repository (GRDR). To learn more about GRDR, view the following link : http://rarediseases.info.nih.gov/GRDR.